Hello everyone. How you all doing?
It’s me, Diane. Just a note to bring ya’ll up to date.
On Monday May 10,2010 Dave & Barb came with me to see my doctor. He was busy at that time so we talk to the coordinator her name is Kim. We told her that we need a copy of my papers so i can keep them for my record in the future. She told us that we can come back @1:20pm and see the doctor.
We went out for lunch, and then we went to providence and they took my blood. We went back to the doctor's office, when i got on the scale i weigh, 138lb. That means I lost weight again last time I was 148lb.and I’m always cold.
The doctor also said I’m anemic, so I need to take iron supplement, and I’m also missing a hormone effecting the red blood cell count. So they gave me a shot that's cost $1000, but they will check with my insurance and if it works out, then I’m gonna take it every 2wks.
After everything we went to Jubitz. I was surprised cause Debbie{HR manager} wasn't there so we talk to Victor Stibolt{Vice president administration} for Jubitz and Lee. Pederson{Manager}. So now I don't work for a while, or when I’m ready to go back.
Thank-you everybody. Love, Diane
May 13, 2010
May 8, 2010
A little more
Hello everyone, it’s me Mike.
You know, it’s so hard to plan for the future with this stuff going on. For some reason the Doctors have a habit of telling us when the next appointment is, but seemingly can not let us know what to expect from the results of said appointment.
We still don’t know when Diane is scheduled to actually start the dialysis. It’s like a secret of something. Very frustrating! I’m determined to find out a projected schedule for Diane’s future appointments, counseling, and finally the actual dialysis start, along with the places, times, and dates.
What we do know
Diane got some paper work from her employer to take to her Doctor, to have him fill out. This paper work is for her short-term disability claim to her health insurance provider.
Diane’s Doctor’s office kept it for about 10 days before giving it back to us. When we did get it back, we saw that he had backdated the start of her disability claim to April 15th. That was the date the seriousness of her condition was confirmed.
The problem is, Diane has been a hard core trooper since then, and has been working full time regardless of the physical and emotional hardships she’d been enduring.
So, we need to get with the Doctor and see if we can’t get the start date changed to the present before we turn in the short-term disability form. Hopefully we’ll get that done on Monday May 10th. (Crossing fingers)
As far as the diagnosis, The medical term for Diane’s condition is stage 5 CKD. This is end stage Kidney disease.
How’s Diane doing?
That poor girl, she’s cold all the time. Not just a little uncomfortable cold, but really cold where she shivers and shakes when she’s wearing a sweater on a 60 degree day.
She’s always feels run down and tired, Diane wants to get out and about so bad, but once work is done, there’s no energy left for anything else.
I don’t know, I guess sometimes there’s just never enough quite time, or hugs to make things right. But I still try.
Mike
You know, it’s so hard to plan for the future with this stuff going on. For some reason the Doctors have a habit of telling us when the next appointment is, but seemingly can not let us know what to expect from the results of said appointment.
We still don’t know when Diane is scheduled to actually start the dialysis. It’s like a secret of something. Very frustrating! I’m determined to find out a projected schedule for Diane’s future appointments, counseling, and finally the actual dialysis start, along with the places, times, and dates.
What we do know
Diane got some paper work from her employer to take to her Doctor, to have him fill out. This paper work is for her short-term disability claim to her health insurance provider.
Diane’s Doctor’s office kept it for about 10 days before giving it back to us. When we did get it back, we saw that he had backdated the start of her disability claim to April 15th. That was the date the seriousness of her condition was confirmed.
The problem is, Diane has been a hard core trooper since then, and has been working full time regardless of the physical and emotional hardships she’d been enduring.
So, we need to get with the Doctor and see if we can’t get the start date changed to the present before we turn in the short-term disability form. Hopefully we’ll get that done on Monday May 10th. (Crossing fingers)
As far as the diagnosis, The medical term for Diane’s condition is stage 5 CKD. This is end stage Kidney disease.
How’s Diane doing?
That poor girl, she’s cold all the time. Not just a little uncomfortable cold, but really cold where she shivers and shakes when she’s wearing a sweater on a 60 degree day.
She’s always feels run down and tired, Diane wants to get out and about so bad, but once work is done, there’s no energy left for anything else.
I don’t know, I guess sometimes there’s just never enough quite time, or hugs to make things right. But I still try.
Mike
May 2, 2010
My first post.
Hello it’s me Diane,
Well I had another appointment again on April 30, @11:10am. The doctor mostly talk about my thyroid, she also change my medicine to a little higher dose. I told her that I’m always cold and sleepy. She said it’s because of my kidney and my thyroid.
On may1, 2010 we got our stuff ready and went to the coast we went to Astoria, for a day the weather was ok but I was cold so mostly stayed in the car. While Mike and Belanna went and walk around.. we also end up @ Seaside and bought some smoke tuna, salmon, and cooked crab meat. We also had Chinese food for dinner and we came home.
Well I had another appointment again on April 30, @11:10am. The doctor mostly talk about my thyroid, she also change my medicine to a little higher dose. I told her that I’m always cold and sleepy. She said it’s because of my kidney and my thyroid.
On may1, 2010 we got our stuff ready and went to the coast we went to Astoria, for a day the weather was ok but I was cold so mostly stayed in the car. While Mike and Belanna went and walk around.. we also end up @ Seaside and bought some smoke tuna, salmon, and cooked crab meat. We also had Chinese food for dinner and we came home.
Apr 25, 2010
The beginning
This being the first installment to our new blog, I thought it would be appropriate to bring everybody up to date on whats been happening in our little world.
On March 24th 2010, Diane went to the doctor for her allergy and flu like symptoms. And also because she’d been feeling very tired and worn out all the time. The Doc took some test and told her they’d get back to her.
On March 23rd Diane started her Thyroid medicine again. Her Doc sent her to a specialist Kidney Doctor to have her Kidneys looked at. She was given a collection vessel to collect a urine sample.
On April 7th, she went to the specialist dragging along the urine sample. Got checked out, then went to work.
On April 9th, the specialist called her and told her that her kidney function was down to 10% of what it should be. Informed her that she would need to go on dialysis 3 times a week. He also told her that in the next 6 to 12 months, she would need a kidney transplant.
On April 14th Diane went to have an ultrasound done on both arms, and both sides of her neck.
These ultrasounds are for preparations for the catheter she’ll need for the dialysis.
At this point, Diane has some more Doc appointment scheduled, with the last one scheduled for May 29th I think it is. We are assuming that it’ll be right after that date that the dialysis will start, but we don’t know for sure yet.
Mike
On March 24th 2010, Diane went to the doctor for her allergy and flu like symptoms. And also because she’d been feeling very tired and worn out all the time. The Doc took some test and told her they’d get back to her.
On March 23rd Diane started her Thyroid medicine again. Her Doc sent her to a specialist Kidney Doctor to have her Kidneys looked at. She was given a collection vessel to collect a urine sample.
On April 7th, she went to the specialist dragging along the urine sample. Got checked out, then went to work.
On April 9th, the specialist called her and told her that her kidney function was down to 10% of what it should be. Informed her that she would need to go on dialysis 3 times a week. He also told her that in the next 6 to 12 months, she would need a kidney transplant.
On April 14th Diane went to have an ultrasound done on both arms, and both sides of her neck.
These ultrasounds are for preparations for the catheter she’ll need for the dialysis.
At this point, Diane has some more Doc appointment scheduled, with the last one scheduled for May 29th I think it is. We are assuming that it’ll be right after that date that the dialysis will start, but we don’t know for sure yet.
Mike
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