Hello everyone, it’s me Mike.
You know, it’s so hard to plan for the future with this stuff going on. For some reason the Doctors have a habit of telling us when the next appointment is, but seemingly can not let us know what to expect from the results of said appointment.
We still don’t know when Diane is scheduled to actually start the dialysis. It’s like a secret of something. Very frustrating! I’m determined to find out a projected schedule for Diane’s future appointments, counseling, and finally the actual dialysis start, along with the places, times, and dates.
What we do know
Diane got some paper work from her employer to take to her Doctor, to have him fill out. This paper work is for her short-term disability claim to her health insurance provider.
Diane’s Doctor’s office kept it for about 10 days before giving it back to us. When we did get it back, we saw that he had backdated the start of her disability claim to April 15th. That was the date the seriousness of her condition was confirmed.
The problem is, Diane has been a hard core trooper since then, and has been working full time regardless of the physical and emotional hardships she’d been enduring.
So, we need to get with the Doctor and see if we can’t get the start date changed to the present before we turn in the short-term disability form. Hopefully we’ll get that done on Monday May 10th. (Crossing fingers)
As far as the diagnosis, The medical term for Diane’s condition is stage 5 CKD. This is end stage Kidney disease.
How’s Diane doing?
That poor girl, she’s cold all the time. Not just a little uncomfortable cold, but really cold where she shivers and shakes when she’s wearing a sweater on a 60 degree day.
She’s always feels run down and tired, Diane wants to get out and about so bad, but once work is done, there’s no energy left for anything else.
I don’t know, I guess sometimes there’s just never enough quite time, or hugs to make things right. But I still try.
Mike
This Blog is intended to keep our friends and family updated on Diane’s progress regarding her kidney deterioration. There will likely be the three of us posting to this blog at one time or another. Diane, Mike, and Belanna.
Hi its Corrie,
ReplyDeleteIn my experience with short term disibility paper work and getting them filled out you have to tell the doctor/medical assistant exactlty what you need the forms to say.
I actually typed out the answers or guidelines out seperately and gave it to the office with the actual forms. Also give them a deadline, I said I need these foms back by such and such date My job depends on it.
Diane also needs to request FMLA forms..which she can print online. This stands for Family Medical Leave Act and will protect your job while you are being treated for a serious medical condition. It is also something You can apply for, because of a family members serious illness.
Don't forget the Doctor's are providing a service you pay for. If you have a question ask and don't settle until you get an answer.