Sep 25, 2010

Transplant orientation

Hi all,

Now that the ball is rolling on the transplant procedure, information is starting to come in a little more frequently. Which means I have more opportunity to share new information with all of you.

On Sept. 29th we have an appointment at O.H.S.U. to go to an educational/orientation session to learn the procedures leading up to, and during, and post kidney transplant.
Diane has invited Grace to go with us (Grace is one of Diane’s cousins).
I’ll be taking the day off work so I can attend.

It’s always so comforting to have a family member to accompany us to these sorts of things. The company somehow makes the event a little less scary.

We also learned that Diane needs to go through a battery of tests and screens. Some of these tests are, Mammogram, Pap smear, blood test, Dental test. (I’m just going from memory here. Diane is asleep right now so I can not ask if there was anything else. So don’t shoot me if I missed something.) These tests are designed to search for any hidden cancers or diseases.

A kidney transplant patient can not have any preexisting or ongoing medical problems that are unrelated to the kidney failure specifically.


Autumn is here, the leaves are starting to change colors, and the mornings and evenings are getting colder.
My project for the next week or so is to get a load of fire wood for the wood stove. I’m thinking that a crackling fire during the coolist part of the day will bring a great comfort to our girl.

With that said, I’ve got to go and get busy today. There’s only one Saturday a week, so I got to get as much done today as I can. (Who wants to miss football on Sunday?)

Good news

Hello everyone,
On Friday Sept 17th, at about 2:45 pm, Diane got a call from O.H.S.U. (Oregon Health Sciences University) transplant department. They talked to Diane about eligibility for a kidney transplant. When Diane told them that she was a citizen of the Republic of Palau, The lady said she was unsure if a Palau citizen would qualify for a transplant at O.H.S.U.
Then said she would call back within two weeks to let us know about the eligibility.

Well, that sure upset Diane. Di was seeing her world collapse around her. About an hour later, Diane got another phone call. It was from O.H.S.U. again. This time with good news. The lady said she checked, and found that a Republic of Palau citizen was in fact eligible for the transplant services offered at O.H.S.U.

We went to dinner to celebrate.

The charity event, Sept.18th, at Faragut park went well. I was really surprised at how many people were there.
It was very tough listening to Diane express her gratitude. She was crying, and I knew how sincere she was being. I noticed there was also a lot of tears in the crowd. It was way difficult holding my own back.

I wrote out a thank you to all of our friends and family. After Diane got done, I attempted to express my own gratitude to those who were in attendance, but I quickly found that it’s much easier to write something down than it is to make the words come out of my mouth.

I don’t think I did a very good job at saying what I wanted to say. So I’m going to post the written version for those who weren’t there at the park.

"Silent gratitude, is of no use to any one. Therefore I’ll attempt to, in my own way, to express my thoughts on this day.

This is a very humbling experience to say the least. I know we are standing here today due to the compassion, exhaustive work, and generosity of others. Those others are all the people who are attending today, as well as a special group of people, The OIC (One in Christ) ministry softball team, namely Charity and Mercedes, who took the initiative to put this whole thing together.

Yesterday we received news from OHSU (Oregon Health Sciences University) transplant division, that Diane is eligible for a kidney transplant. There was some doubt from the staff who are working with us about eligibility for non-americans. But at this time, Diane is on the waiting list for a kidney transplant.

This has been a difficult time for our family, filled with uncertainty and worry.
We are still waiting to hear back from the social security disability people to see if Diane will be eligible for help from them.

This frustratingly slow process has been made bearable due in large part by the efforts of my sister Barb and her husband Dave, who have unselfishly helped us to complete all the redundant paper work, and talked to the varies agencies to get the important information.

It’s hard to ask the right questions when your eyes are filled with tears.

My brother Dan, who is not here today, but I know his thoughts are with us today, has graciously made one of his homes available to us to live in while we are going through these trying times.

I want you to know, One hundred percent of financial gifts will go toward Diane’s medical care.

I am so humbled by the overwhelming generosity from our friends and family. One, of many lessons, we can take away from all this is
We will not be afraid……. as long as we have you, our friends and family, to stand by us.
Thank-you, Me-sulang"